07 Jul Susanna, daughter of a child with PANDAS
Our daughter had a collection of what I thought were completely random and frightening symptoms, which did not come on suddenly, they slowly built over a matter of months: Couldn’t sleep, couldn’t concentrate, hyperactivity, brain speeding up, depression, lack of appetite to name a few and she was changing before our eyes. Within a few minutes of my appointment with Susie she knew, correctly, we were looking at PANS/PANDAS. That initial diagnosis from Susie saved us valuable time, some people take years to get the correct diagnosis as the majority of GPs/doctors do not recognise this condition. We continue to work along side Susie plus a PANDAS doctor.
Susie’s thorough tests and approach has meant our daughter has improved dramatically. We identified the root cause of her illness was from mould, confirmed in a urine test and in 5 months with Susie’s guidance we have cleared her body entirely from mould. Susie’s knowledge is phenomenal and she tailors the supplements to the child. Our daughter had had enough of taking capsules, which was worrying me, but it didn’t matter – Susie came up with a plan which included smoothies, patches, drops, creams and powders. If I am having a panic about something Susie answers my emails with a good suggestion. She is helping me along this PANS/PANDAS journey, which is a daunting one, but I feel hugely well supported by her incredible expertise and would NOT hesitate to recommend her to anyone on the PANS/PANDAS journey. Her gentle nature means you never feel judged even when you are explaining a symptom which is so out of character and alien to your child’s normal behaviour.